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Dear Friends,

Help support individuals with special needs at their most vulnerable time!

I am sure that you will agree that being in the hospital can be a stressful experience. For individuals living with developmental disabilities, a hospital stay can be absolutely frightening. Individuals living with developmental disabilities are at risk due to their inability to communicate their feelings and needs, and may not be able to comprehend the treatment and procedures needed for their recovery and rehabilitation.

Hospitalizations due to illness and aging present challenges related to quality of life and quality of care. Many individuals with intellectual and developmental disabilities require assistance in advocacy, personal care, and to help understand and comply with medical directives. Our individuals are often frightened of being in an unfamiliar setting, and are often limited in their ability to request assistance.

The Guild for Exceptional Children’s (GEC) “GEC Personal Care Program,” helps individuals with developmental disabilities that are elderly, or otherwise fragile during their hospital stay and rehabilitation process. The GEC assigns a direct support professional (DSP) to stay with our individuals, as needed, to comfort them, explain medical tests and procedures, advocate on their behalf and ensure that they receive the care and treatment needed for their recovery.

The “GEC Personal Care Program,” receives no funding from any government agency or insurance, but solely relies upon the generosity of donors to provide this program of compassionate care.

There are 123 individuals living in our residences, ranging from 27 years to 90 years of age, with the average age being 56 years old. Currently, 72% of our residents are over 50 years of age, and one third of those have ambulation problems. Additionally, 30% of the 123 individuals we serve in residences have a diagnosis of Down syndrome and are at increased risk of developing Alzheimer’s Dementia, and display active symptoms of this degenerative disease.

With the advanced age of the population served in GEC residences, there has been a significant increase in the number and duration of in-patient hospitalization and rehabilitation center stays. As an example, from July 1, 2014 to July 1, 2015, there were 10 residential adults in the hospital or rehabilitation centers who were accompanied by GEC staff. The average length of stay was forty days. Seven of these adults required 24/7 staff support for the duration of their stay. An additional 20 other short term acute hospital stays were also covered during that same time period. We anticipate many of these challenging health care situations to continue, and increase over the next several years.

The average cost of GEC staff support of our individuals during hospitalization or rehabilitation is $250 for each ten hours of assistance.

We need your help! Every contribution, large and small, will help us in this important Mission of Support.

With your help, the GEC can continue this vital program and continue to ensure the physical and emotional well-being of those entrusted to our care.

Your generosity will make a difference!

With appreciation,

Arlene Rutuelo
President Bd. of Directors

Paul Cassone
Executive Director/CEO 

 

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